Cure HHT’s Events Coordinator oversees all events, campaigns and activities related to fundraising and awareness. Events range from small peer-to-peer grassroots online fundraising, walk and family days in collaboration with academic medical centers to large events and will include managing logistics, marketing, materials, budgets and timelines to ensure that all activities are a success.
Main point of contact for all inquiries related to HHT fundraising and awareness; Work with all fundraisers to ensure that events and campaigns are successful and reflect the organization’s mission and values.
Manage the Walks and Family Days program. Responsibilities include: location management, coordinating outreach, registration, sponsorship, volunteers and fundraising efforts, manage all communications, materials, logistics, and day-of event needs for each event.
Collaborate with internal team to create content for materials and communications related to all fundraising and initiatives. Content may include (but are not limited to): emails, flyers, invitations, letters, website posts, social media campaigns and newsletters.
Manage fundraising software (Classy) and ensure that the software fits the organization’s and fundraisers’ needs that website is up-to-date.
Assist in maintaining the organization’s database (SalesForce), website and other systems to ensure information related to fundraising is accurate and up-to-date.
Assist the Executive Director with Board-related tasks and special tasks surrounding fundraising, awareness and community engagement.
Highly organized and detail oriented with excellent time management skills
Flexible, team player who is service oriented with high-level interpersonal skills
Excellent written and verbal communication, including phone and editing skills
Sound judgment, integrity, and respect for confidentiality are absolute requirements
Ability to effectively interact and collaborate with all levels of co-workers, including assistants, staff, and senior management
Advanced computer skills including proficiency with MS Office and strong aptitude to learn other software systems
Experience with MailChimp and Wordpress strongly preferred
Bachelor’s degree and 2 years of relevant experience strongly preferred.
Will consider applicants with equivalent combination of education, training and a minimum of 4 years experience.
Telecommuting is allowed.
Additional Salary Information: Will be negotiated based upon experience
About Cure HHT
Cure HHT is an international organization dedicated to improving the lives of individuals affected by Hereditary Hemorrhagic Telangiectasia (HHT), a genetic blood vessel disease affecting 1 in 5,000 people, approximately 1.5MM people worldwide. Cure HHT's mission is to Find, Treat and Cure HHT through increasing HHT awareness, ensuring patients have access to expert care and advancing therapies and finding a cure for HHT.